Updated: Jul 14, 2021
The fact I have rheumatoid arthritis (RA) isn't a secret to anyone who knows me. I'm incredibly open about it because it's still viewed as weakness and physically it is and can be. People are still embarrassed to be sick, or not feel well, or to be viewed as weak.
And worse? The feeling of guilt. I was a bit overwhelmed this past weekend with it and had to keep snapping myself back.
But better? Almost daily I receive private messages on my social media accounts or via text from friends asking for advice on a wide variety of health issues.
Obviously they're aware I'm not in the medical field, but I'm open about my experiences and so I hope they in turn are as well.
I was so furious at RA sufferer Glenn Frey (of the band The Eagles) when he passed away in 2016. I wished he had come forward about his experience with RA and the medication he took while he was alive. My anger outweighed my grief at his loss for a very long time.
"From about 2000, Frey had suffered from rheumatoid arthritis which affected various joints of his body. The medication that he was prescribed to control the disease eventually led to colitis and pneumonia." -Wikipedia
Now, I understand his reluctantly and don't blame him or anyone for not being open, but a part of me still wishes he had used his platform to further education and research. It's still unknown what medication he was on.
Which leads me to why I'm writing this. Today I had to refill one of my RA medications. I've only been on it a month (two injections per month) and I was shocked to see the monthly price of this med.
Five-mothafuckin-thousand seven hundred twenty-three dollars and 13 cents. The $90 is my monthly co-pay.
On November 10th of this year, my birthday, this administration goes before the Supreme Court to argue for the removal of protections for people with pre-existing conditions.
It's me. I'm those people.
So are my best friends.
So is your Mom.
So are your kids.
So is your husband.
Even with private health insurance or company sponsored health insurance, the insurance company could drop me. Or you. Or your spouse.
Who's going to be standing on the corner with me because I want to live? Or, when I can no longer work, will you cover my bills or will you complain I may need the disability or the social security I've paid into since I was 14? You think you're paying for others right now? You ain't seen nothing yet.
Vote this fucking monster out of office on November 3rd, and get his evil crotch-spawn out of our White House.